Prostate Cancer

Pudsey Bear said:
Had my PSA done last week, it seems to have levelled off at 0.02, so it's still there, bot not concerning.

I've been off the hormone jab/tablets for over a year now; the radiotherapy didn't do my bowels much good, and I'm up 1 to 4 times a night, no rhyme or reason as to why it varies, as my intake is fairly similar, I rarely drink much after 6 pm, barring a small glass of milk.

No more treatment is planned.
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Snap.
June last year was my last jab. The radiotherapy got my bowels too, have to plan for early morning starts, can’t leave until after it’s settled so around 10 is my leaving time. And what’s with getting up 3 or 4 times a night? I was expecting that to get better! Luckily unless something is on my mind I’m back sleeping pretty quickly, I think I’ve slept on the loo a few times! Worst bit is if I wake around 5, it’s hard to get back to sleep then, so generally I’m up. But I’m still here, traveling a fair bit, missing out on nothing.
 
We took the jab with us, they were a bit sceptical at first, but it's not rocket science, Liz was better at it than a few of the so called specialist nurses, only one of whom could do it pain free.

I had to get up, bad night wee wise.

I'm still on tamsulosin.
 
Since 2018 having detected some cancer I've been on active surveillance ever since. Quarterly PSA test and 6 monthly (just changed to annual) consultation with prostate finger, and 2 yearly MRIs. PSA generally stays in the 7.0 - 9.5 range with occasional jump to 12.0 - 15.0 due to infection or ....
Daily tamsulosin. A few days not taking it is enough to remind me how effective it is. I feel fortunate to get great service here in East Lothian.
 
Pudsey Bear said:
That seems very high, mine got up to 4.5, with a Gleeson of 3.3.

What's your Gleeson score?
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Gleeson? Actually, I don't know. It's foreign territory to me and hasn't been mentioned. I must enquire at the next consultation. I can only assume it is/was low. In my case from 20 biopsy samples in 2018 only one was cancerous. Routine 2 yearly MRIs continue to show "no change". Lead nurse who monitors me has monitored one patient for years with PSA in the 20s. With me they keep emphasising it's the trend over time they are watching. Less concern about the actual number.
 
Hmm!!

One of the first things they gave me was the Gleeson score, PSA means very little in reality.

I would be banging on doors asking for the full picture, we only pass this way once.
 
Pudsey Bear said:
Hmm!!

One of the first things they gave me was the Gleeson score, PSA means very little in reality.

I would be banging on doors asking for the full picture, we only pass this way once.
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Yes a single PSA means little. Over time, the trend is quite informative. Unchanged MRIs over 8 years is a positive indicator in my case. That said, thanks for your well intentioned nudge.I will enquire.
 
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