Prostate Cancer

Glad you had the test and the result is the right one, that's all you can do, after my diagnosis and treatment hopefully I'm going to be fine, and all because it was found early, it was all down to my persistence with the Dr to get tested, in France and other countries you get mandatory PSA testing at age 50, it's a joke in the UK, I had two of my local GPs telling me it's basically a waste of time getting a PSA test, if I had went off there advice I think things may have been different with my outcome, I am always telling friends and people I meet to get a PSA test, as one day I know my advice is going to save someones life.
 
I'm ringing my Oncologist today, almost since I started with the hormone therapy, I've been getting more and more pain from my joints and muscles, I'm hoping he takes me off it as I'm able to less and less even around the house.
 
Pudsey Bear said:
I'm ringing my Oncologist today, almost since I started with the hormone therapy, I've been getting more and more pain from my joints and muscles, I'm hoping he takes me off it as I'm able to less and less even around the house.
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They told me this would happen, also told me it would cause osteoporosis,and weight gain.
Which it has on both counts, they gave me pills to take to slow it down, 1 taken weekly and 3000mg of calcium daily..
It's a shite drug this hormone blocker.
Hope they let you come off it ,but for me it's for 18 months more ,then if body can tolerate it longer .
 
I was on the jabs for about 12 months, which once I'd found someone who knew the right way to administer them (I passed on the info to every nurse before the jab after that), I was fine, but it was very hit and miss at first, even a wheelchair job one time, I couldn't even stand up let alone walk to the car park, the tablets are much easier of course.

I take magnesium but can't do the Calcium too much as I have bloody pseudo gout in me knees and it aggravates it.
 
Found a lump in my left boob while away in Orkney ,
Been doctors confirmed lump so back see the cancer man again to get it checked out..
Fingers crossed it's just the hormone therapy causing it..or the tamalosin pills as both can cause lumps in boobs.
 
I have painfull hip joints after radio treatment, right side and cannot walk far, had exray and no problem with the hip joint they tell me.
 
Good to hear, I have a fine pair of lungs too now, still waiting for Oncology to ring me.
 
Thanks to the OP for starting this thread.I'm in my last year of my 70's. I got a psa score of 60 back in April. Had the finger test which found enlarged prostate, MRI and bone scan which shows possible cancer has not spread to bones. Awaiting results of the biopsy, hopefully this week. The urology dept of southmead and weston meet up on Wednesdays. My symptoms same as others peeing 3 times in the night. Luckily our scheduled may ferry trip was flexi, it's been rescheduled twice now till end of August. Hopefully 🤞
 
mid4did said:
Thanks to the OP for starting this thread.I'm in my last year of my 70's. I got a psa score of 60 back in April. Had the finger test which found enlarged prostate, MRI and bone scan which shows possible cancer has not spread to bones. Awaiting results of the biopsy, hopefully this week. The urology dept of southmead and weston meet up on Wednesdays. My symptoms same as others peeing 3 times in the night. Luckily our scheduled may ferry trip was flexi, it's been rescheduled twice now till end of August. Hopefully 🤞
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Most of the time, it's all benign and a bit of treatment, and it makes life a little better. I'm down to once or twice a night now, depending on my diet that day.
 
Shock horror ,well I've have had other systems lately nothing to do will cancer and the treatment.
After bloods tests we visited haematology consultant today my iron levels are sky high which turns out is very bad.
Test reveals I have hereditary gene problem.
I've tested positive for Haemochromatosis,
I now start next week having blood removed once a week fir 2 weeks.
Then re test,

That's bollocks up the camping for next few weeks..
 
Well I had the meeting today to discuss results. Turns out I have cancer but given a gleason score of 7 (4+3), medium risk.They've booked me in for a CT scan to check pelvis and chest in case.Told me to carry on with our planned trip next month so that's what we're doing.Told I'm too old, past 72,for any operation which would probably make me incontinent 🙄 so probably injections and pills, fingers crossed on that one.
 
That's where I was last year, so don't go worrying, you may need to go for radiotherapy at some point, not the worst thing in the world, 5 days for four week's, only takes ten minutes, that includes getting undressed etc, no pain except the morning enema, and drinking and holding 500ml of water.

The jabs can be an issue, and were for me, there is a right and wrong way to administer them, one way, and you need to ask for a wheelchair, the others vary from slight pain for 2-3 days to virtually none at all, only one nurse at the hospital knew the best way, I (me) had to show anyone after that how to do it and also when they switched me to the doctors surgery to save me a 3 hour round trip.

Tip: If you do get the therapy, start taking 500mg of Ibuprofen the same day, as you can get inflammation, and that can get quite painful. They didn't tell me that, and it took me a few days to get around to ringing them, "Oh yes, that can happen", at which point I enquired why no one had bothered to tell me it might.
 
Pudsey Bear said:
That's where I was last year, so don't go worrying, you may need to go for radiotherapy at some point, not the worst thing in the world, 5 days for four week's, only takes ten minutes, that includes getting undressed etc, no pain except the morning enema, and drinking and holding 500ml of water.

The jabs can be an issue, and were for me, there is a right and wrong way to administer them, one way, and you need to ask for a wheelchair, the others vary from slight pain for 2-3 days to virtually none at all, only one nurse at the hospital knew the best way, I (me) had to show anyone after that how to do it and also when they switched me to the doctors surgery to save me a 3 hour round trip.

Tip: If you do get the therapy, start taking 500mg of Ibuprofen the same day, as you can get inflammation, and that can get quite painful. They didn't tell me that, and it took me a few days to get around to ringing them, "Oh yes, that can happen", at which point I enquired why no one had bothered to tell me it might.
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Thanks for that.Lots to look forward too then :)
 
You just have to wade through it I'm afraid. I don't do pain very well; I get enough without the cancer BS, but tbh the enemas were the worst. if you have issues with that, there is a cream they can prescribe, which is like an instant off switch. Use sparingly.

I'm having issues with joint pain & muscle loss, not helped by being disabled, so virtually no real exercise, this is a possible side effect of the hormone jabs and tablets it seems, I'm waiting to speak to my oncologist to see if I'm ok to come off them. I had a PSA test last Thursday.

Serum prostate-specific antigen level 0.01 ug/L [0.0 - 6.49], it was 0.03 last time, so I can't go much lower.
 
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