Prostate Cancer

Update.

They have put me on the hormone tablet now, I have 8 left so contacted the docs for new script, next day I get a text refusing to prescribe them ffs

"The new medication that Leeds hospital is asking us to prescribe is not suitable. The GP surgery is not allowed to prescribe this medication and this should be continued to be prescribed by the consultant at Leeds.
We will be sending a letter to advise this however please if needing a supply go back to your consultant sooner as the letter might take a few weeks.
Thanks
Practice Pharmacist
AWC Modality"

So much for it being a NATIONAL health service
 
"......Leeds hospital is asking us to prescribe is not suitable".....
"this should be continued to be prescribed by the consultant at Leeds"
So which other leeds hospital is there that they are telling you to go to? You should reply 'Come on then, tell me where I should be going'.

That is just like a Trumpism. He recently asked 'which idiot passed this law'? Then the youtube switched to a clip from where he was previously president. In it he said 'this law will . .. . . do such and such a good thing, it's brilliant'.

Makes me glad I live in an excellent health care area. Our doc saved my wife's life after he spotted her heart trace wotever its called, she had had a heart attack. He called 999 and insisted on an immediate ambulance, got her swiftly into hospital and she got a stent. He also got my dad immediately into hospital when he had a throat thingy that the best throat operationalist in the country came and fixed. His chances of survival were 50/50 and they asked me if I wanted them to operate or not. I asked what would happen if they didnt and they said he would certainly die.
That's twice the doctor heard what was happenning, rushed out of his surgery giving his next several appointments to another doctor, jumped in his car with his kit and rushed round to our house. What a lovely man. He should have retired years ago - in fact he did - but we still see him busy at the medical centre. I think he deals with serious cases if he's needed. I am sure he does it because he has such a love for the health of anyone he can help. He's not rich, he drives a ten year old small car. There will be about ten thousand people at his funeral. The whole town will turn out.

Except that as he is Hindu, he did once say to me that he is supposed to be cremated on the banks of the Ganges and his ashes thrown into the river.

 
Talkng of pills I am being investigated to see if there is any life in my skull. No, actually for possible Parkinsons. I have been sent a text from the surgery saying I have been referred to the 'Geriatric Neurosomething-or-other department at Leicester Royal Infirmary'. So I am officially Geriatric, as well as being infirm.
About time I got me one of those campervan things . . .
 
I finally got a call from the surgery pharmacist, it seems some drugs come up as a red flag and can only be prescribed by the consultant.

If they had been clearer in the text or actually rang me, it would have saved a lot of time, now sorted the Leeds hospital pharmacy is going to courier them to me, 2 months each time.
 
They had me on 2 tabs, one was to shrink the prostate the other a counter drug to stop me growing a big set of dolly partons. :eek: 😂
 
Last time I had a prostate test, he removed his digit and proclaimed "I've never seen that before". I will assume for the sake of propriety that he really meant "I have never felt that before". Apparently there should be two of something, and they should be equal in size. One was bigger than the other.
I'm saying no more . . . I'm not on any Dolly pills or shrinking pills.
 
gasgas said:
Last time I had a prostate test, he removed his digit and proclaimed "I've never seen that before". I will assume for the sake of propriety that he really meant "I have never felt that before". Apparently there should be two of something, and they should be equal in size. One was bigger than the other.
I'm saying no more . . . I'm not on any Dolly pills or shrinking pills.
Click to expand...
:eek:
willies.jpg
 
I, too, had prostate cancer diagnosed in February 2024, hormone injections every 3 months (until 2026 ), and a course of radiotherapy, and you will be fine, they said. Now, in April 2025, I am still suffering. Radiotherapy has all sorts of side effects. After your one-month treatment, every day you think that's it, no, far from it, the next 3 months you feel like sh.t your bowels and bladder seem to have a mind of their own. I also had a catheter for 5 months, not very nice. After they removed it, the next day I was rushed into the hospital on blues and twos ( thanks to the quick thinking of my wife ), five hours in resus, then a week in intensive care, this was septic shock, this leaves you with allsorts of things, memory not so good, dribbling, shaking. Then, a turp operation is performed to pee again. I have had spinal stenosis for many years, controlled by tablets, now the radiotherapy has made this worse, and now it looks like an operation on my spine. So prostate cancer is not always straightforward.
 
DAVE AND MARY said:
I, too, had prostate cancer diagnosed in February 2024, hormone injections every 3 months (until 2026 ), and a course of radiotherapy, and you will be fine, they said. Now, in April 2025, I am still suffering. Radiotherapy has all sorts of side effects. After your one-month treatment, every day you think that's it, no, far from it, the next 3 months you feel like sh.t your bowels and bladder seem to have a mind of their own. I also had a catheter for 5 months, not very nice. After they removed it, the next day I was rushed into the hospital on blues and twos ( thanks to the quick thinking of my wife ), five hours in resus, then a week in intensive care, this was septic shock, this leaves you with allsorts of things, memory not so good, dribbling, shaking. Then, a turp operation is performed to pee again. I have had spinal stenosis for many years, controlled by tablets, now the radiotherapy has made this worse, and now it looks like an operation on my spine. So prostate cancer is not always straightforward.
Click to expand...
I had hell after the radiotherapy, so I badgered them for days, Someone in Urology said try Ibuprofen, it took two days to work and I carried on for a further week and now I can pee okay again, I had sepsis after the second biopsy, not fun at all.
 
Not a good experience and I hope you and others with this problem recover soon.
When I was diagnosed after a biopsy it took 6 months before action was taken. I had read everything I could about the options and pros and cons. I decided I did not want the radiotherapy. They said because I had already had a TURPs I had to have X rays and I kept saying no. Eventualy they referred me to a surgeon at another hospital who could not believe what I had been told. First hospital had also said the cancer was well contained inside the prostate so there was no urgency. This surgeon said it was actually right on the edge and needed doing very quickly. Op went well, only in for 1 night, went 3 years with PSA below measurable levels. I thought great, however it then started rising very slowly. I still wonder if this was due to the initial delay. Am now at 10 years, fit and healthy but still being monitored.
 
bjh said:
Not a good experience and I hope you and others with this problem recover soon.
When I was diagnosed after a biopsy it took 6 months before action was taken. I had read everything I could about the options and pros and cons. I decided I did not want the radiotherapy. They said because I had already had a TURPs I had to have X rays and I kept saying no. Eventualy they referred me to a surgeon at another hospital who could not believe what I had been told. First hospital had also said the cancer was well contained inside the prostate so there was no urgency. This surgeon said it was actually right on the edge and needed doing very quickly. Op went well, only in for 1 night, went 3 years with PSA below measurable levels. I thought great, however it then started rising very slowly. I still wonder if this was due to the initial delay. Am now at 10 years, fit and healthy but still being monitored.
Click to expand...
On the basis of reports here about side-effects of hormone therapy and radiotherapy, I reckon that surgical intervention could well be the preferable option. I was left to make the choice myself last year, and that was what I opted for (without the benefit of threads on here!).
 
The radiotherapy itself is fine, what I struggled with was the enema every morning, it also made my stools acidic which just got worse over the 4 weeks, then as it progressed serious discomfort trying to pee until.i was told about the Ibuprofen. I was more or less fine after two weeks, but it took two months to get back.to something approaching normal, now I take one Tamulosin and one hormone tablet a day, night time peeing varies from one to four per night, two seem average.
 
Not to much bother here, just sqeeze end Mr prickels tight to build pressure then there she flows, helped my tail end too, i can now sh-t through the eye of a neddle at 100 yards. 😂
 
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