Prostate Cancer

Next time i get a call to the clinic im asking to have the bu--er cut out, just cant be bothered with all the cr-p.
 
I decided not to have any treatment.

So far I feel ok.
But back again next week to do an assessment about another type of care and some financial advice. Not to sure what it all means yet . . Still we’re away again next week hope the weathers better than the last three weeks away.
 
Pudsey Bear said:
What a day.

Degarelix jab booked for 10:10 this morning at the docs, get there 10:00 eventually get called in, talking to the nurse, she's never done one of these before just normal jabs, so alarm bells going off in my head after finding out the pain they can inflict if done wrongly.

I happen to ask if they actually have the right jab as there was a LOT of confusion between the two health trusts (Leeds & Bradford) so she goes to get it only it isn't there, it's been delivered elsewhere so we volunteer to go get it, she tells them we're coming, only a mile away, they have no idea who I am, they have no idea why I'm there, They have no idea if it has been delivered there or not, I sit very impatiently for 30 minutes, I go tell them to sort it out PLEASE and ring me.

No call yet :rolleyes: :rolleyes:
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You can order your jab in the same way as your other meds.
I order mine with my other meds and take it to the clinic my self .I just pick it up on the morning of the appointment.
So much easier than relying on then to get it
 
Not wise I feel but I'm not privy to the full details of course, I'd rather not have the treatment either but it is giving positive results.
 
Mr and Mrs Tupcox said:
You can order your jab in the same way as your other meds.
I order mine with my other meds and take it to the clinic my self .I just pick it up on the morning of the appointment.
So much easier than relying on then to get it
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Once it's prescribed to go to the pharmacy I could but I'm having to go to the hospital again tomorrow as its just a clusterfeck at the docs here, like has more experience than the nurse I got yesterday almost glad they screwed up.
 
I had my hormone jab at the docs today, no screw ups this time.

A nice lass who listened to how it was done at Jimmys & how I wanted it done by her and it was no problem for her, I just need to wait to see how she did now, she did the PSA bloods as well.
 
Got diagnosed July 19th decided to have surgery, was aware of the 62 day guide line from diagnosis to start of treatment, live in Cumbria but my regional specialist hospital is Blackburn, unfortunately the prostate specialist surgeon is off sick, have just been told this week that the wait time for my op is 10 weeks at least, so that's at least 133 days from diagnosis at least ! a tad longer than 62 days, told I'm a Gleason 3+4 so low risk and there are people a lot worse than me in the que.
Could I ask what other people's wait times have
 
I'm only having radiotherapy but that's in November, as for Diagnosis to Treatment try 2017 to 2023.
 
Me I was told it’s a bit late but I could have treatment if I wished.
The consultant and myself decided to let nature take its course.

Back to hospital a few weeks ago and there is no change on a scan
due to go again for an mri. Then one more mri later and they can tell me what’s what.
In the meanwhile every thing is sorted affairs wise and I am enjoying a day to day thing.
And do not regret any decisions .
 
Had another mri yesterday it’s to set some sort of bench mark I think.

No ones saying much I guess I will hear the results in due course. So no news is good news as they say.👌
 
Budgie said:
Got diagnosed July 19th decided to have surgery, was aware of the 62 day guide line from diagnosis to start of treatment, live in Cumbria but my regional specialist hospital is Blackburn, unfortunately the prostate specialist surgeon is off sick, have just been told this week that the wait time for my op is 10 weeks at least, so that's at least 133 days from diagnosis at least ! a tad longer than 62 days, told I'm a Gleason 3+4 so low risk and there are people a lot worse than me in the que.
Could I ask what other people's wait times have
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Just been told wait time now over 4 months as no one in the whole of Cumbria or East lancs can perform the robotic surgery, but they have a guy coming out of training soon so should help things !!! so going down the right to choose route and have an appointment next week at Christie's in Manchester hoping they can do op a lot quicker, got local MP involved now
 
A friend of mine had the robot op 2-3 years ago, it didn't go well at all he's still not right but he's walking again.
 
Hormone therapy is now having major problems on my body, muscle and joints are Painful most days ,second blood test next week ,and results the following week after 6 monthly vist to oncologist...following radiotherapy
 
Which one are you on, I'm on Degarelix once a month, they tried me on the 3 month one and I had chest pains, I'm waiting to go on the the pill version ASAP so I can be free of the vet.
 
Pudsey Bear said:
Which one are you on, I'm on Degarelix once a month, they tried me on the 3 month one and I had chest pains, I'm waiting to go on the the pill version ASAP so I can be free of the vet.
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3 monthly only one they offer in our district, I've asked for monthly it was a no...
 
That's just not right at all, if it's NICE approved you should be able to get it, mine is done at the docs now.
 
Mr and Mrs Tupcox said:
Hormone therapy is now having major problems on my body, muscle and joints are Painful most days ,second blood test next week ,and results the following week after 6 monthly vist to oncologist...following radiotherapy
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Yep same here, sore legs sometimes forgetfull, tummy cramp,burning legs, tabs dont agree with me one bit. :(
 
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