Prostate Cancer

What a stressful bleeding day.

I had to go for my flu/covid jabs today and as usual, I got a text reminder, which is crap, all they says is a a local shopping centre, but nothing about where in the shopping centre, so I went where they did it last time but that is now a shop, Luckily Liz was with me so she went into Boots to find out, she got the one who knew F all and directed her to where they do it in Boots, she realised she'd got the dummy and asked someone else and of course it was at the far side, normally I struggle walking far anyway but I managed to twist my knee a few days ago and it is really buggering things up for me.

So I get there and let them know who I am, eventually, I get into the cubicle and there is only one seat, it seems the jabber and the jabee should both be seated, (Liz looked it up as she has had trouble in bothe arms since her last jab) anyway I asked, and she was puzzled. So I said okay I'll stand up for the jabs, 60 year olds don't do petulant vary well but she made the effort.

This not giving patients the info they need makes my blood boil so once home I rang the docs to speak to the practice manager, it seems you have to do it online, so I filled in this crappy form for Modality the outfit they all work for and I didn't hold back.

So, I looked in my diary for my next apps and it seems 15th of November is going to be a busy day.

I have
ENT @ 09:20
Degaralix jab @ 15:00
& I start my radiotherapy on the 7th so would be in Leeds for at least one of them, so I rang the cancer number and again was told that the mailbox was full and it hung up, so I rang the main number and got put through to the radiotherapy reception and between myself and actually helpful lady sorted it all out.

Do the ENT, then go to Leeds for 11:35 and Liz can do the Degralix jab at home, I may leave that till the weekend though.

That sounds like a rant I suppose, but not a patch as on my complaint form. I just hate being messed about by those in the "care" profession"
 
It is a rant, but these sort of things are so frustrating! Hope you get a decent answer from practice manager but won't hold my breath! I have to say our GP surgery is really efficient compared to the previous one in Kent. I also twisted my knee recently and called in to ask how to get referral for physio and was given an appointment for two days time! And she noticed I had a blood test later the same day and offered to change it so only one visit.
 
Turned all my jabs down as not tested and could lead to long time problems, all on the net to read.
 
trevskoda said:
Turned all my jabs down as not tested and could lead to long time problems, all on the net to read.
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I have turned down all treatment. With agreement of the consultant .
Too late to do anything .for me.

I know the result of my actions fully and now know what’s what and have everything sorted out.
time goes very fast now .

The only thing I can say to you is to speak to somebody about the injections before it’s too late to do anything.
The internet is not always the best source of information .

Other. Family. Members get very very angry and upset when they find out it is something that maybe you could have avoided.

It’s only advice you don’t have to take it but maybe worth a rethink.
What ever you decide all the best…
 
Just come our from radiotherapy, just uncomfortable laying in the machine but soon ove with.
 
On day 6 out of 20 for radiotherapy, into the routine of it now, it is more boring than anything else, a bit of tum discomfort from the constant enemas but I'm not empty yet so the rumours must be true, it affect the bladder mostly, lots of wanting to pee but not a lot of peeing, having to drink gallons of water before and after is pain too.
 
Pudsey Bear said:
On day 6 out of 20 for radiotherapy, into the routine of it now, it is more boring than anything else, a bit of tum discomfort from the constant enemas but I'm not empty yet so the rumours must be true, it affect the bladder mostly, lots of wanting to pee but not a lot of peeing, having to drink gallons of water before and after is pain too.
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Are yiu on Tamsulosin to help you pee.?
 
I mentioned it to the staff yesterday, and the doc rang me and prescribed it so I pick it up at the hospital pharmacy this morning with some cream.
 
Just waiting at Boots now.
 
So much publicity at the moment ( about time) re prostate cancer...Dave just nagged our GP to be tested again, as he is 70 with symptoms and had a ( first ever test) borderline PSA a few months ago. To be fair, the GP was good and has made referrals.
His mum used to make me laugh...always called it Prostrate cancer and once pointed out to me that it couldn't be that common as none of her friends ( female) had ever had it..... As she was 90 by then I just told her women hadn't got the same parts....and left it at that! :rolleyes::rolleyes:
Pudsey Bear said:
Just waiting at Boots now.
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I had to tell them that the micro enema was causing problems (baboons 4rse) they said that so long as I was going prior to the therapy and they could see to aim then it was fine, the cream does work but you can only use it for a week so I found Savlon works well if applied often enough, the Tamsulosin seems to be helping, I googled using it with Alfufosin and it said NO don't do it, so I checked with the doc and was told to take it 2 hours before bed and it'll be okay as it drops your blood pressure.

So now I take a Sena tablet daily and Loperamide every couple of days and keep my digits crossed.
 
What nobody ever tells you is that after radiotherapy is all over you may go through a period of depression. Someone who had had radiotherapy warned me about it and was quite right. At least if you are forewarned it won’t come as a surprise and you know it will pass…which helps a lot.
 
I may not notice, I'm just getting an upset stomach, can't move without farting and a sore bum still despite not having an enema for three days, cream helps but not much.
 
Liz is giving me my hormone jab today, hope she does it like the nurse does it.
 
Coming up to nearly 4 weeks since prostectomy, had catheter in for 3 of them, still got a UTI because of it despite a course of antibiotics, back at docs tomorrow about UTI. Got me nappies on 24/7 but have noticed a decrease in leakage yippee 🥳 a positive, big erectile disfunction, apparently there going to send me a pump out that will help 😂
 
Liz did the hormone jab again yesterday, I think it went well, I'll know by tonight.

Off for radiotherapy day 8 if I can get onto the road it's -2°c and we don't get gritted here.
 
Pudsey Bear said:
Liz did the hormone jab again yesterday, I think it went well, I'll know by tonight.

Off for radiotherapy day 8 if I can get onto the road it's -2°c and we don't get gritted here.
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Hope all works out well for you, im next when letter arives soon. :eek:
 
No problems with the hormone jab, Liz did as I instructed.

Not happy having to do enemas though.

When I got there this morning, my first thing is go to the disabled loos, the first two had no paper (always check before making a deposit) and the other one was filthy, so I went looking for the cleaning staff and let them know it wasn't good enough, I explained to them that radiotherapy outpatients had to do and enema and there were only these three disable loos available as the radiotherapy clinics were not open until 08:45 but my attendance time was 07:15, I also said there are 12 machines and they can do 40 per hour each, not all would be disabled of course but a lot will use them to preserve dignity as you can't clean up in the normal loos, the disabled loo keys are available to any Oncology patients on asking so they should be checked often, I was told that there used to be three cleaners for the floor, now only one, so I just said the disabled loos need to be a priority.

A funny thing is going on though, I've been bald for 35 years, but I'm sprouting dark hair on the top of my head now :D :D :D
 
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